Community Rules & Etiquette and Privacy Guidelines
Thank you for being part of our community. To ensure the best possible experience for all members, we have established some basic guidelines for participation.
By joining and using this community, you agree that you have read and will follow these rules and guidelines. You also agree to reserve discussions and shared files and content to that best suited to the medium. This is a great medium with which to solicit the advice of your peers, benefit from their experience, and participate in an ongoing conversation. Questions should be directed to our member services department via the Contact Us link on this site.
Please take a moment to acquaint yourself with these important guidelines. If you have questions, contact the member services department. In order to preserve an environment that encourages both civil and fruitful dialogue, we reserve the right to suspend or terminate membership in this community for anyone who violate these rules.
- Respect others. Focus on the content of posts and not on the people making them. Please extend the benefit of the doubt to newer guests and members; there’s no such thing as a stupid question.
- Respect the purpose of the community. Use the community to share successes, challenges, constructive feedback, questions, and goals instead of products or services that you provide. If you’ve found a product or service helpful, please share your experience with the group in a respectful way.
- Use caution when discussing products. Information posted on the discussion groups and in the libraries is available for all to see, and comments are subject to libel, slander, and antitrust laws.
- All defamatory, abusive, profane, threatening, offensive, or illegal materials are strictly prohibited. Do not post anything that you would not want the world to see or that you would not want anyone to know came from you.
- Respect intellectual property. Post content that you have personally created or have permission to use and have properly attributed to the content creator.
- When posting items in our collaborative environment, please indicate if the item is not available for reuse. It’s also advisable to contact the owner of any material if you would like to reuse it.
- Post your message or documents only to the most appropriate communities. This helps ensure all messages receive the best response by eliminating "noise."
Discussion Group Etiquette
- State concisely and clearly the topic of your comments in the subject line. This allows members to respond more appropriately to your posting and makes it easier for members to search the archives by subject.
- Send messages such as "thanks for the information" or "me, too" to individuals, not to the entire list. Do this by using the "Reply to Sender" link in every message.
- Do not send administrative messages, such as “remove me from the list,” to the group. Instead, use the web interface to change your settings or to remove yourself from a list. If you are changing email addresses, you do not need to remove yourself from the list and rejoin under your new email address. Simply change your settings.
The Legal Stuff
This site is provided as a service for the members of NICU Parent Network. NICU Parent Network is not responsible for the opinions and information posted on this site by others. We disclaim all warranties with regard to information posted on this site, whether posted by NICU Parent Network or any third party; this disclaimer includes all implied warranties of merchantability and fitness. In no event shall NICU Parent Network be liable for any special, indirect, or consequential damages or any damages whatsoever resulting from loss of use, data, or profits, arising out of or in connection with the use or performance of any information posted on this site.
Do not post any defamatory, abusive, profane, threatening, offensive, or illegal materials. Do not post any information or other material protected by copyright without the permission of the copyright owner. By posting material, the posting party warrants and represents that he or she owns the copyright with respect to such material or has received permission from the copyright owner. In addition, the posting party grants NICU Parent Network and users of this site the nonexclusive right and license to display, copy, publish, distribute, transmit, print, and use such information or other material.
Messages should not be posted if they encourage or facilitate members to arrive at any agreement that either expressly or impliedly leads to price fixing, a boycott of another's business, or other conduct intended to illegally restrict free trade. Messages that encourage or facilitate an agreement about the following subjects are inappropriate: prices, discounts, or terms or conditions of sale; salaries; profits, profit margins, or cost data; market shares, sales territories, or markets; allocation of customers or territories; or selection, rejection, or termination of customers or suppliers.
NICU Parent Network does not actively monitor the site for inappropriate postings and does not on its own undertake editorial control of postings. However, in the event that any inappropriate posting is brought to the attention of NICU Parent Network we will take all appropriate action.
NICU Parent Network reserves the right to terminate access to any user who does not abide by these guidelines.
Any personal information you provide to us including and similar to your name, address, telephone number and e-mail address will not be released, sold, or rented to any entities or individuals outside of our organization except as noted below.
With Whom Do We Share the Personal Information We Collect Through This Site:
Our Service Providers
We may share your personal information with companies (including our affiliates) that perform services on our behalf, for example, companies that help process credit card payments. Our service providers are required by contract to protect the confidentiality of the personal information we share with them and to use it only to provide specific services on our behalf.
Government and Legal Disclosures
We may disclose the personal information we collect through this Site, when we, in good faith, believe disclosure is appropriate to comply with the law (or a court order or subpoena); to prevent or investigate a possible crime, such as fraud or identity theft; to enforce our Terms and Conditions or other agreements that govern your use of this Site; or to protect the rights, property or safety of our company, our users, or others.
Remember The Risks Whenever You Use The Internet
While we do our best to protect your personal information, we cannot guarantee the security of any information that you transmit to us and you are solely responsible for maintaining the secrecy of any passwords or other account information. In addition other Internet sites or services that may be accessible through our site have separate data and privacy practices independent of us, and therefore we disclaim any responsibility or liability for their policies or actions. Please contact those vendors and others directly if you have any questions about their privacy policies. For any other information please contact us using the Contact Us page.
INCLUSIVE LANGUAGE AGREEMENT
NICU Parent Network is a community of parent leaders. We are advocates, authors, educators, and innovators. What unites us is our shared mission to provide support to NICU and bereaved families across the United States.
Some of the organizations we lead are embedded in hospitals providing bedside support. Others are community-based. Collectively, our organizations offer a broad range of services to meet families where they’re at, including, but not limited to: delivering care packages, offering in-person and virtual support groups, and providing one-to-one peer mentoring. We are able to build these compassionate communities because each of us has something unique that clinical training doesn’t offer – lived experience. We know what it is like to have a baby in the NICU - and we know what it’s like to experience loss.
When presenting to our community it is important to have a trauma-informed mindset and approach. Please be mindful that many of us have endured significant trauma and loss in our lives related to our fertility, pregnancies, birthing experiences, and parenthood journeys. Some of us do not have living children. Many of us have children with significant and complex medical and developmental needs. We ask that you keep these considerations in mind when presenting and that you are thoughtful and deliberate when choosing the words and images you use.
Diversity, Equity, Inclusion, and Belonging
One of NPN's Guiding Principles is a commitment to Diversity, Equity, Inclusion, and Belonging. We know that the words we use matter and we are striving to foster an organizational culture that reflects this. When you present, we ask that you do your best to use inclusive and affirming language. This includes recognizing that our families and community represent a full spectrum of values, beliefs, cultures, and identities. One of the ways we are honoring this diversity is by moving toward the adoption of more gender-inclusive language. For example, we are embracing the use of terms like “parent,” “dyad,” and “partners,” alongside terms like “mothers,” “fathers,” and “mother-baby,”. We also welcome the use of people’s preferred names and pronouns and invite you to share your own. If this language is new or unfamiliar to you, that’s ok. We’re all learning. So please share what you know with us. If these changes in language and practice feel uncomfortable or awkward at first, we understand that too. But we believe these changes are well worth it as we build a more affirming and respectful community for ALL the families we serve and that everyone with a passion for serving NICU families knows that they belong here.